Living with Ourselves

[Sophia1]

Hello @Shaz51

I was just about to close up on here..then spotted your likes in the background...thank you..

how is everything with you now....your kidney? mr Shaz?

[Shaz51]

hello @Sophia1

I am here with you even though I might not say something

everything is crazy for me at the moment my friend but seeing you is great xx

my mum and MIL are in hospital

the car`s gearstick is getting fixed

Mr shaz`s Bipolar 11is under stress this week

no work today

my kidney is stable but now have other problems that need to be looked at -- diabetes ect

but that`s enough of me venting , sending you hugs for today

what`s happening today xxxx

[Sophia1]

hello dear @Shaz51

That is one huge load for you to contend with when you have been struggling so long with your own physical health...

Diabetes added to your issues....which type is it?

Mr Shaz has bipolar 1 or 2?  That is a new diagnosis?  so change in medication again...that would explain some of his struggle with taking his medication previously....

both mums in hospital....worrying and draining...

you are needing to vent....release....let it out...

if you have already explained all of this elsewhere and are over talking about it...just redirect me to the thread...I understand...you must be exhausted....

cars! my car has been at the dealers for 4 weeks....they are still testing and working out main issue...they dare not send it back as this is the third or fourth time now....

hopefully yours is fixed soon and back with you....

[Shaz51]

hi @Sophia1

Have Diabetes 2 because of the kidney disease stage 4 , got another appt to see if I need meds of  lifestyle changes , but he is thinking meds as it is because of the kidney

funny Mr shaz always thought he had bipolar 2 years ago but was diagnosed with everything else but -- knowing that it is bipolar2 it has explained it all

Yes my mum had a big operation 18 months ago to remove 15 inches of dead bowel , so she is in hospital again with a bowel obstruction , they are trying other treatment before surgery

hope you car come back soon too fixed xx

[eudemonism]

@Sophia1

No world soccer for me yet... Not really my thing... 

I get out and about on a regular basis... I find that being out and about too much, overwhelms me... And I just wanna come home and chill out... It's hard to find the balance... 

I'm lucky enough to have a car... I usually drive most places I go... Down the street, too visit people and a causal drive once and a while... I used to walk everywhere before ihad a car but not any more... It's a blessing as much as it is a curse... 

Eude 

[Adge]

Hi @Sophia1 Thanks.

No I've never been pain-free, it's been frequent for the past 25 years - it's due to my scoliosis, which was diagnosed far too late (at about 26) to correct it. So it's chronic pain or a chronic condition (they call it).

It's always been only at night, after lying still for several hours - now it has extended itself from the early afternoon onwards (into the night).

I have monthly therapeutic massages, & that helps. I have not been to a physiotherapist in about 25 years - since back then (after 6 or 8 sessions), it made no difference (did not help).

No Dr has ever suggested anything to assist, although I've told them many times that I have scoliosis. It might be time to try a physiotherapist again, although I'm not earning enough to pay for anything else really.

The MH support group people were very vague, they didn't say whether the meeting is re-scheduled for this month - or whether it's just a wait until next month (3rd Saturday).

I haven't heard from my neighbour yet. Usually we catch up (reciprocal invite) on a Saturday or Sunday afternoon, every 6 or 8 weeks or so. I invited her over last time, & we take it in turns - she seems a bit formal or habitual about that, but it's fine.

I hope your having visitors over went well. Yes can be awkward, especially if you have to lie down.

I usually have to have a rest after a visitor or appointment, especially if it went for several hours.

I went to MH lunch group today, which is a lot of driving & very tiring. Into city early in morning to see psychologist - then straight out to MH lunch group, then finally home by about 1.30 or 2.00pm.

There were no inappropriate behaviours aimed at me by people this time, which was a relief. Often there are (like last time), which is very difficult to deal with.

I deal with that sort of thing every day at work, I cannot deal with it in my own social time (as well).

Sorry too tired to write any more, my mind is blank.

I hope your pain has eased, & that you are well or better soon.

Adge

[Sophia1]

hello @Shaz51

So sorry to hear about the discomfort and pain your mum must be in...I hope that they resolve the issue without surgery..however if only option that there is a beneficial, long term result for her.....

I don't know a great deal about bi-polar only that it does seem to take a long time for a correct diagnosis ....as with bpd...

Hopefully now that Mr Shaz has the diagnosis ...they will quickly find a medication that works well for him...taking a little while to get into his system and work of course....as you already know...

You are a very strong...compassionate lady mrs Shaz and I hope that you now tell yourself how well you deal with all of these many hurdles in your life....

take care both of you xx

[Sophia1]

Hello @Adge

Sorry if you have already told me about your condition....I don't want to sound as though I am making excuses....I really do forget so much these days....confusion...fog...reigns...

When I first came out of the rehabilitation hospital....I went to a hydrotherapy class organised through my physiotherapist's centre....a physiotherapist was in the pool with us...

There was a man there in his 40's who told me that he had scoliosis long term...a result of a motor bike accident when he was a teenager from memory...young man anyway....

He found doing specific exercises designed by  the physiotherapist under the supervision of the physiotherapist in the water at the same time beneficial....They were not a cure as you well know...He said he did feel some relief along with the painkillers...

Do you have private health cover for extras? that is where the cost came in...

I just hope that you can find something that will give you some amount of relief....I know that tension...which you have been under a lot of for some time...only increases chronic pain...

The MH group organisers do not sound very organised...The group that I spoke of ...I had the same impression....the two co-ordinators seem to enjoy merrily chatting away to each other....rather than spreading out and sharing time with those who attended...Although the outings themselves sometimes make up for the shortcomings of the organisers...

Perhaps the lady neighbour does like the formality side as you mentioned....We are all so different us human beings....

thank goodness!

Take care and hopefully have some restful ..peaceful sleep tonight...

[Zoe7]

Hi @Adge I am seeing a physiotherapist for hydrotherapy under a Chronic Disease Management Plan - it used to be called 'Enhanced Primary Care' (EPC) - maybe it is worth mentioning to your GP - in my case it is because I am having ongoing care for 3 or more different illnesses which include my MH diagnosis, high blood pressure and now back issues. You may be covered under this plan and it is medicare rebated for 5 sessions. I am around $15 out of pocket for each visit. Worth noting and mentioning to your GP.

Hi @Sophia1 I have been following along here and there but haven't wanted to 'jump in' with the great discussion you and Adge have been having. You are both being very supportive of each other and it is lovely to see 

[greenpea]

@Sophia1@Maggie wishing you both a calm and peaceful day, Lots of love the pea