Life can be a Pain

[Former-Member]

 G-R-O-U-P  H-U-G

Thanks Shaz. we can do this TOGETHER  @Shaz51,  @BlueBay,  @outlander,  @Owlunar,  and anyone else around today.this thing called 'life' - 'tis difficult but not impossible 🙂

[outlander]

super cute @Former-Member 

[Former-Member]

How are you? Thinking of yo🌷🌿

[outlander]

thinking of you @Owlunar hoping your ok

hi @Shaz51@Former-Member@BlueBay

[Owlunar]

Hi @outlander@Former-Member@Shaz51@BlueBay

I am okay - I have had a lot of pain and tonight I feel all right - and I have been busy trying to make my new printer work and these things can drive me crackers

I took the printer back to the vendors and I had the toner in the wrong way - the pictures don't make much sense - and I got it home and it prints - but all I get is a message that there is something wrong somewhere and I took the printout to a friend of mine who works on computers and she told me to turn the router off and on after it rests for a while - or to get onto the manufacture tomorrow - so that's what's happened and all of this with my back giving me the willies

So yeah - computers and wi-fi - what fun all of this is - normally things just look obvious to me but this one has been a trick - and I seem to have lost my gmail account so I am using the other one - and I will be searching for that tonight - the gmail account I mean - ah - this is a puzzle

So I might not be around as much as I would like - which means everything will probably work out - 

And - on Friday I am seeing my pain specialist - they have been trying to get me to see a different doctor but I am stable and nothing needs changing so while my specialist keeps working I want her for my specialist - she is a nice person but I never feel happy about seeing her - I have had too many reductions in my medication but hopefully I have reduced enough myself

But that's Friday's problem - I don't have to worry about that right now

And Lapses - I will have to read the Prophet Haggai - I don't know if I ever have - I have not read the prophets much except for Isaiah -it sounds intimidating

So I am around and intact and I am sorry you have pain too Lapses - life can be painful and often is

Dec

[Former-Member]

Oh dear @Owlunar, so sympathise with your pain. After yesterday, mine being the worst I've felt - I'm amazed its nearly nonexistent today in comparison. Makes no sense. I nearly called an ambulance because I couldn't hardly move. Frightens me here on my own. Do you have an action plan if it gets so bad you can't move? Yesterday even bending to sit on toot made me cry in pain, then twisting to wipe, omg. I couldn't cope, would finish myself if that continues. Can't face it. But today is an improvement, on the other hand I've barely done a thing - just rested 2days. That's not living either. Fighting g blackdog.

The GP has decided I'm "chronic" so doesn't want to do more investigations. All degeneration. Just wants to throw pills at me which all list depression as a contraindication, sucks. Can't live like this, I'm trying.

Another disappointment with my Dr is she wrote out my six month blood pressure med repeats - but didn't check my BP. No only that but I opened the new bottle and she's increased the dose by 60mg. (180-240mg) without mentioning it to me. Not sure if its an error but started today and I'm OK. Just feel left out of my own treatment and medical.

I don't mins dieing but I don't want pain or to wake up 2days later with organ shutdown. If this is how they treat people (me) medically before 60yo, I'm not wanting to age.







Its a delicate balance. .

Hey,

[Owlunar]

Hi @Former-Member

I can't comment on your BP medication but I do know a lot of pain medication

You need to see a pain specialist and they do vary - I might have an idea if you live in Melbourne and this would not really tell me where you live but I know where there are some pain clinics - otherwise you can google this

I am older than you and don't fear dying either but not yet - I still have a lot of things to do in my life. Nothing has been bad enough to make me want to leave yet - but if I was not having the medication I have for my pain or they wanted me to go into supported care that might be different - I always feel nervous before seeing my pain specialist

I really do understand about the pain making it hard to move though - without my slow release medication I would be having this problem - and people who have never had pain to any degree or think they know something do say the strangest thing - but I know the truth - paralysing pain is horrific - and I remember the days before I had anything done I was in a living nightmare but complex tests proved Degenerative Disc Disease and I think you have the same - its very common

If your GP doesn't want to treat this then I can only suggest you get another opinion - I will warn you though if you do see another doctor about your pain that you do not mention medication - this raises red-flags - and causes problems - in fact - you would be sensible to ring an ambulance with the pain that severe but again - do not mention medication - 

It's a very unfortunate thing but pain-medication is something with a lot of other problems attached - and it is hard to get past this - but I do think think it's time to start looking for pain relief now

In the meantime there is always heat and this is the first go-to for me - and then there are other kinds of treatment besides medication - I have tried everything but that's me - everyone is different

I wish you the best - I want to know how you are going

Dec

[outlander]

Goodness me @Owlunar your not having much luck with technology are you
I hope you have a bit more luck today
And good luck for friday but as you said thats for friday not now
💕💕💕
And im glad to hear from you and that your ok ❣❣

[Former-Member]

Hi @outlander, how are you? Please tag me on your usual thread so I can catch up on your news. Been a bit slack lately and memory lapses don't help, but I do care and hope youre OK 🌷🌸

Thanks @Owlunar for help, sorry I was morbid last post. Last thing you need. After Sunday, not being able to barely move, its raised red flag so need to put something in place. Perhaps now the Dr has labelled the pain 'chronic' I'll ask her for a referral to a pain clinic. I'm in the mountains west of Sydney which probably has a few, if I can travel. I get the 'pain medication' stigma. A real catch 22, but on the other hand I'm scared of medication that alters my mood (as mist of these do) because I get suicidal, uncontrollable, and its addictive, and I barely think rational now with the cPTSD / depression / anxiety / poor suppirts... all chewing away in the background. Yep, its a fine balance.

Have you got one of those heated throw rugs . last night I put it over me on the bed, nice to wake with lower half feeling warm. My hips & knees really feel the cold, warmth does help (can't relate to ppl who alternate hot&cold for pain). AnywY, thanks for the empathy. You're doing great under the circumstances. I just got a call from friend out of town inviting me to A/T so probably should kick but into gear, have brunch & meds & dress and go there. Haven't visited her a long time. My girls best friend lived in that street and it brings back visual memories, not bad but hurts just the same (because she's gone)/but friend doesn't get it. The weather and feeling fragile isn't good so I'll make it brief, that will wipe my day out, wasted the morning keeping back straight in bed & staying warm. Pretty slack. So much to do. What are you doing today? Thanks again Dec 🌷🌿

[outlander]

hi @Former-Member

ive got two usual threads now so ill tag you in both though there isnt much on one of them

thanks for checking in- i know youve been struggling youself as well

im still not the best and still pretty much the same as what i was only ive gotten alot more busy which isnt helping me one bit

i hope your doing abit better now